MS and Me

51Q8lU1ONyL._SY355_

I was diagnosed with MS on October 1, 2014.

It all started when I woke up one morning in April of that year with extreme dizziness. It was so bad I could hardly walk to the bathroom. I managed to get myself moving and ready for work and even drove to work.

That day was a hard day for me. The world was spinning and I felt like I had no control over my body. I worked a full 8 hour day and when I went home I was so afraid the police would think I was drunk so I went slow and paid really close attention to the road and other traffic. I knew I could make it home but I also knew something was seriously wrong with me.

I cried the entire way home and when I finally made it home, I was relieved that I didn’t hurt anyone or even myself. The next morning, I told David  that something was wrong and I really needed to go to the ER.

He took me to the emergency room and they started doing tests. They couldn’t figure it out and after many hours decided I needed an MRI. After the MRI, the doctors came in and asked me if I had been out of the county? I said no, but we were just in Arkansas, could that be it? They told me no, but that I had developed lesions on my brain. They were different then they had ever seen. There were several around 8 total and they weren’t small ones. I was scared and I think David was too. They explained to me I’d have to see a neurologist and they set me an appointment with Dr Baker.

Dr Baker was an older gentleman with many years in the field. He was awesome and so was his staff. He did many tests and told me even he as a neurologist had never seen anything like this. He told me not to worry (like that wouldn’t happen) and that he would figure it out.

9cfd2c46f79d1590b716e4d3eee5aa8e

He set me appointment after appointment with many doctors even an Infectious Disease doctor that specializes in TB and Aids. We ruled everything out. I didn’t have TB or Aids or any other underlying disease. From there I was sent to an MS doctor. Dr Husain. She was and is the best doctor. She did some tests and couldn’t figure out if it was MS or not so she set me up for a lumbar puncture (Spinal Tap) . That was the most painful test I have ever had. They had to knock me out for it because it was so painful.  A lumbar puncture if where they tap your spine for some fluid and then test it. I spent the entire weekend after the LP crying, hurting and in so much pain I thought I’d die.

I begged David to take me to the ER. They were so sweet there. They helped me, kept the room dark let me lay on a pillow in the waiting area and everything. When I told them what I had done they knew exactly what I needed. I needed a blood patch.

slide_57

A blood patch is when you give your own blood and at the same time they run a catheter in your spine where the lumbar puncture went and they take your blood from your arm to your back. I was in so much pain because I was leaking spinal fluid. It was terrible. (I didn’t even know that could happen)

As soon as they filled the leak with my blood my head stopped hurting and I felt about 75% better. It took me a while to feel 100% but wow it helped me a lot.

When I went back to Dr Husain’s office for the test results David was with me and she said she was 100% satisfied with the test and I did in fact have Multiple Sclerosis.

I began crying, looking at my life and seeing it end right there in her office. I saw a walker and wheelchairs, someone having to feed me, someone helping me with everything and I looked at David with devastation on his face and all I could think is what kind of burden I’d be for him. What would happen to my life? Was it over? What would I do?

I only ever really knew about MS from people or books. Seeing what others had gone through I just knew it was not me. I wasn’t MS, I didn’t have MS, but I did  and now what?

First thing I did was call Dr Baker. He confirmed yes, I did have MS. I was put on medicine right away. Copaxone injection 3 times a week. 1 year into that medicine and I was not getting any better. I changed to Gilenya. Takeing it everyday. Testing every month for 6 months. It started to affect my liver. I was so scared. I wasn’t getting better, the meds were not working, now what?

She put me on Aubagio.

download

The side effects to this medicine happen in the 1st 6 months. My hair fell out. They say thinning hair, but I was balding. I had horrible tummy issues and felt sick almost all the time. After the 1st 6 months were over I started to feel better. My blood work looks good and my hair is really full again.

AVC.MS_

The effects I have with MS are extreme fatigue. Sometimes it is so bad I can barely get out of bed. Even walking from one room to another makes me need a nap.

I worked a full-time job during all the testing and stuff and all I went through with the doctors and managed to run a normal life and house. After I lost my job in July of last year my MS took a small turn for the worse. The fatigue started creeping in stronger and stronger. Headaches daily. Depression 100% present.

5843088c0df45e2d8fb7ab2a0111cb68

Living with MS is a daily struggle. I fight my body every day. I tell my body to get out of bed every morning. I stopped allowing myself to feel sad about anything because I am just happy to have more days on this earth.

hqdefault

I know many people have or are having it worse than me and it breaks my heart. 4 years into this disease and I can still walk by myself, talk and live a pretty normal life (aside from the many side effects of this disease). For so many others  they cannot say the same thing. It breaks my heart and they need to find a cure for this horrible disease now.

wholesale-shipping-100pcs-lot-ms-fighter

I will never stop fighting this disease….

Making a Greeting Card Holder

Hi Everyone!

Thanks for stopping by.

Today we are making a Greeting card holder for all those A2 size cards you are making. An A2 size card is measured at 5 1/2 x 4 1/4. I recently made a bunch of cards and now I need somewhere to store them.

The following items are needed to make this project with me.

  • 1 12×12 piece of Cardstock
  • 1 12×12 piece of Decorative paper
  • Glue
  • Pencil
  • Scissors
  • Stamp of your choice and ink(optional)
  • Score board and paper trimmer

Let’s get started:

Place your 12×12  piece of cardstock on your scoreboard

Cardstock 12x12

Score it at 4 1/2 inches & 7 1/2 inches

Turn 45 degrees and score at 6 inches and 10 1/2 inches

Turn back to your score mark at the 4 1/2 inch mark and make a small pencil mark at 3 1/2 and at 8 1/2 turn your paper to the right one time and make a mark with your pencil at 7 1/2 flip your paper to the 6 inch mark and make a pencil mark at 4 1/2 inch. You should now have this.

Cardstock Scored

On the side where you scored at the 6 inch cut up the score line until you reach the crossing score line. DO NOT CUT OVER THE CROSS SCORE LINE. do that on the 6 inch cut and the one next to it. Turn the page over to the other side and cut those as well. You will have this.

The middle 2 boxes need to be smaller. Fold each one in towards the score line but DO NOT GO OVER THE SCORE LINE.

Open those up and place glue on the back side of the long piece and glue to each side. Line them up with the inside score line.

Glue the top of the fold over the long piece for more stability.

Do the same to both sides. Your cardstock should look like this

Make sure you add enough glue that it closes completely. I had to push them together to get mine to stay and let the glue do it’s job.

Fold up the angle lines and glue them down.

Fold up the larger side and make sure it fits perfectly. Like this:

Glue both sides down.

Trim the small edges unless you want them. I didn’t so I cut them off.

It’s time to decorate. You will need 1 piece of 12×12 decorated paper. I selected this one.

Using your paper trimmer trim the 12×12 piece to 6 inches and using the 6 inch piece of paper turn and trim to 4 1/2 inches two times leaving the last piece for the back. After cutting the two 4 1/2 inch pieces place one in the paper trimmer and measure up 1 inch, using your pencil place a small mark at the 1 inch. Turn to the right make a mark at the 1 1/2 mark. Place the other piece behind it with your image facing behind the first one and line the two marks up on the paper trimmer and cut. You should now have this

Using the rectangle pieces you cut place them on your trimmer and using the longest part of the paper place it at the 1 1/4 inch and trim. Turn and place it at the 3 inch mark and trim. You should now have a 3 x 1 1/4 piece.

Glue the sides and the back to the cardstock and then add the small piece to the bottom. Please note the small piece will not cover all of the cardstock so place it close to the bottom. Using the other piece of 3 by 1 1/4 turn it over and place a message on there. You can stamp it or write it whichever you chose. I used an edge punch on mine just for decoration. You can also tear it slightly to make it cute. Score it on one of the long sides at 3/8 inch and fold.

Glue the edge to the front side of the greeting card holder using the 3/8 score mark you made.

Add your cards and you are finished.

I saw this on a video on YouTube and wanted to try it. I watched a video from MayMayMadeIt.

If you don’t have a score board you can use the tip of pen (not the ink) and a soft space like on top of some paper and use a ruler to get the measurements from above to get the fold lines. If you don’t have a trimmer you can just use scissors and a ruler.

Send me pictures of your finished product and I’ll post them here for you. You can also join my Facebook group and add them there. I cant wait to see what you come up with.

The Journey Begins…

Hi Everyone! Welcome to my first blog post.

Rock ‘N’ Paper Scissors here. Well actually my name is Sandy. I live in Oklahoma, I am married and have 1 step son and 4 fur babies. 2 dogs, 2 cats and 1 bird.

SAMSUNG

The name comes from a few things. Rock comes from my love of Rock music. I have always been into Rock music. My favorites are Shinedown, Breaking Benjamin, Creed, Staind, Three Days Grace, Nickelback, plus many many others. Paper Scissors comes from the 2 things you need to paper craft. You have to have paper of some kind and you will have to cut it to make something out of it.

I am a long time Crafter at heart. I’ve been crafting for as long as I can remember. I’ve tried everything from making table covers to crocheting and even designed a house out of cardboard. (wow that was a long long time ago). I think my favorite part of crafting right now is paper crafting. I love to make photo albums, cards for any season or holiday and I have even done Pocket letters with many people and I enjoyed it.

I remember one time, I was just out of high school, I crocheted an afghan and a matching pillow and entered it into a craft show at a fair and won! I was so excited and thought WOW! I can really do this. I even surprised myself. They were really pretty and I spent several hours making them so when I won I was really proud of myself.

I won’t say I’m the best at anything, but I love to do it. It may not be perfect and the lines may be slightly off, but believe me I put my heart into whatever I make.

My husband is amazing!! He built me this table for my craft room.

20171119_172606 (1)

Isn’t it great! He did an awesome job. I keep the table covered with projects I am working on so it is really a great space to have.

 

Coming up:

I am starting my YouTube channel on March 1st. Keep your eyes out and check out the videos. I will be doing my first Giveaway 2 weeks after my first video. It will have something to do with Easter, so share, like, subscribe and all that fun stuff so you can be the lucky winner. I will share a sneak peek in the blog posts to come as well on all social media platforms.

Stay tuned!

Now let’s go make some awesome crafts together!!!